I am sure you are all curious what in the world I am talking about with this title. Well, as you know, I had my port put back in when I was up in Omaha last week. Well, I had been taken off my blood thinner, Coumadin until I had the procedure and placed on Lovenox shots instead. after Wednesday, I restarted the Coumadin but no one really told me what I should do about the Lovenox/Coumadin after the procedure. SO I just did what I thought I should do, restarted coumadin. Starting Friday night and Saturday, I started urinating blood, which is not uncommon with the ureteral stents, sometimes. But this time, I literally was having to push clots through so I could pee. I was pushing through clots the size of prunes through, what would you say ladies, a pinhole? arg! not fun. This was every time I went to the bathroom. So with some good advice from my dad and thanks to my wonderful primary care doctor who I bothered on her personal phone on a Saturday ( I promise I won't do that regularly!) I restarted taking my lovenox shots along with my Coumadin to help my blood thin out as much as possible to get rid of these yucky prune sized clots. Are you all cringing by now, hehe. I told you, I don't hold back much, do I.
Anyway, I had a good weekend with my family, we layed low most of the weekend. We did celebrate Doug's dad's birthday on Saturday night and played our new WII game, it is so fun. Sunday, we went to church and then I got to go see one of my cousins very tiny baby. It was so fun to get to hold a little tiny baby again. I was in heaven! Makes me really realize how big Ella has gotten. Speaking of Ella, she is going to be 3 tomorrow! Wow, already 3. She seems like 3 going on 18. She is a bit more cooperative most of the time, but is at that stage of wanting to do everything herself, well everything she wants to do... but when it comes to having to throw away her trash or hanging up her coat, forget it, she all of a sudden turns into a little baby who can't do it. Ha, not happening girl! She is into the computer right now, we go to mickey mouse clubhouse website and she can sit there for a long time playing the games. She uses the mouse and the keypad with only a little assistance from us. She is her daddy!
I was supposed to have a PET scan this morning but it got rescheduled to Friday. I restart chemo next Monday I think. I haven't looked at my calendar yet to verify all of this. It is a full week of doctors appointments, Wednesday is the dentist, thursday I see my surgeon here in KC, for a follow up of my bowel obstruction surgery. But then this weekend I will have one of my great friends here with me to celebrate Ella's birthday and just hang out with us. I am very excited for that. So there is a lot going on that I am anxious about: restarting chemo infusions for one, but there are so many fun things to look forward to that is coming up...
Thanksgiving is one of my favorite holidays, it is a time when friends and family can get together and just be thankful for each other and for everything in our life. I love Christmas but it has just gotten out of control. We need to all stop obsessing about gifts and everything else. Instead I think we need to simplify the holiday and enjoy the beauty of it all and again just enjoy being together. I know the kids won't understand that, so don't worry I will be getting all the kids in the family a little something!
Well have a great week everyone. Until next time... Shawndra
PS I just hit a wrong button and almost lost this whole thing... Oh my gosh, that was close. I was also going to add for Sue that I am restarting Folfiri, not Folfox. That is all.
Monday, November 10, 2008
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12 comments:
I was going to try folfire. I am stage 4colon--I finished 12 folfox treatments with Avastin, but I had spreading while on it...how have you done on folfire
if you don't mind me me asking. My email is suew1234@gmail.com if youd rather answer me there. Thanks and feel good!
http://cancersucksbigtime.wordpress.com/
Oh my...ouch! Don't you feel that since you are an APRN, they don't give you all the info? Sometimes I like to be treated as if I don't know anything!
Praying for no more prunes...and big a Happy Birthday to Ella!
Thanksgiving is that nice buffer before the storm. Just kidding I love the thanksgiving holiday too and all that it represents. I know what you mean about "out of control" holidays HOWEVER, I just can't give it all up. I am thankful for so much, and one is the ability to do those special things for the kids....young and old. We don't forget the giving lesson though. Each year I take the grandkids and select angels from a salvation army angel tree. They then get to learn the very hard lesson of going to the toy store to shop for someone else. It is a small token, but hopefully a large lesson.
WOW, Ellas 3! How can that be? Enjoy her special day as well as the weekend ahead with your friend. It's looking like it could be a cold one, YUCK!!!
Many prayers going out to you for the upcoming Dr. visits, restarting of chemo...with the wish that all goes just as you want it to. That magical season is upon us, don't be afraid to ask for that miracle!
Shawndra, WOW, that did make me cringe but you're unbelievable in the fact that you talk about it with humor & lightheartedness ( I think that's a word Ha ). I think you are such a neat person in all your posts that I forget that you even started this blog to journey through your cancer treatments & progress.
I will pray that your chemo treatments are as side effect free as they can be & I will be thinking of you & praying for you on the birthday of your little angel Ella. I'm glad the " prunes " are over with too! God Bless You, Vickie in J.C.
Happy birthday to Ella!!!!!!!!!!
Ang
Shawndra-
I am sorry that you had the experience. Hopefully you will feel better. Happy Birthday Ella!!! You have a very special Mom! Our thoughts and Prayers are with you always! Keep Believing!!!
The Mudge Family
Hi Shawndra,
I agree completely about the gift expectations for Christmas. One way I have found to curb it a little is by following the rule of three. Christmas is about the birth of christ and he received three gifts, so in my family we only ask and receive three gifts, total. It has not only helped simplify the holiday but has also helped my children as well as myself to remember the true reason to celebrate. Hope things go well for you this week, and I will keep you and your family in my prayers.
Pamela
I hope you are feeling better than when we talked on Saturday. Speaking of...I have been meaning to ask who your primary care doc is, because I think I need a new one and it would be nice to have most of my docs in one place again.
I am mad at myself, because I knew Ella's bday was coming up! I hope she had a wonderful day and that you enjoy (almost) every moment of having that adorable 3 year-old in your life. I see so much of you in her it takes me back almost 30 years...crazy how time flies. We should dig out those old video tapes sometime soon.
Have a great week and I will talk to you soon!
Love, d
I'm so happy to hear how you're handling your life challenge.
There's always something else coming up, and you always handle it in this most fantastic way.
I hope you made Ella's third birthday party as fun as you expected it to be.
We keep on praying for you.
Love,
Roswita
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