That song just popped into my head. I am sitting here, needle in my chest (port), getting my antinausea medication that they give me before starting the chemo infusions. I will be here for about 3 hours, then they will put the last medication on a pump that I will take home with me for two days, then I come back in one Thursday to have the pump taken off and I am free for a week and a half. That will be the schedule for the next several months. Doug is with me today, yaa!
I had a great weekend. We had Ella's birthday party on Saturday. It was fun, about 13 kids got to get their face painted if they wanted and hair sprayed different colors. They then dressed up in tutu's, tiara's and wands to dance around to music. I was a bit disappointed, they said there would be stuff for the boys, which there really wasn't, except for the hair spraying they liked but they weren't too excited about tutu's and tiara's. I know Ella had fun though and got a lot of fun girly gifts! My close friend, Sara, was in town with me for the weekend which always makes me happy! She is one of those friends that you just feel so comfortable around, you don't feel like you have to entertain, you can just be yourself and can talk about anything. That is a rare find sometimes, I am lucky to have found a few people like that. Unfortunately she lives in Chicago, good to get to see Chicago once in awhile but I wish she was closer so I could see her more often. We had a lot of fun, thank you Sara!
I haven't gotten the results back from my scan last week. Which, I am going to ask my nurse right now if I can get those results! They should have them by now. I will let you know what the findings are.
The plan for now is to continue this chemo regimen (folfiri) every two weeks for the next two -4 months. If my CEA level is not dropping with the chemo after a couple months, then I need to have a CT scan and possibly need to change chemo med's. If my CEA is dropping, then after 3-4 months on chemo I will do my CT scan then and touch base with Dr. Foster about surgery. This is all based on Dr. Foster's plan. So please pray that my CEA level does drop with chemo, that the chemo is killing those "bad" cells,and that my miracle does happen.
I don't remember if I really discussed with you all my appointment with my surgeon last week who did my first surgery and did my surgery a few weeks ago with my bowel obstruction. She is a great doctor, I like her very much. We discussed what she saw when she went in this last time. She saw a lot of little cancerous spots all over my small intestine, kind of like little beebee's all over. Then there is the mass of cancer in my pelvis that is all over the bottom wall, which was what caused my bowel obstruction, because the cancer had wound it's way around the intestine and she couldn't cut it away so that is why she had to do the ileostomy, so I wouldn't be blocked. That was very difficult to hear and picture. Again, it brings me back to reality of the situation so I can only pray for a miracle. I just keep repeating in my head.."I shall not die, but live, and declare the works of the lord." I like that saying. Through him, all things are possible, even miracles! Thank you all for the prayers. I know he hears each of you! I will try to write sooner! I hope you all are doing well too! shawndra